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Showing posts from April, 2022

The Edge of the Precipice

It's been several weeks since I've actually published an update on Ashley.  The truth is, I had written an entire update nearl y two weeks ago, but I hadn't fully proofed it and the daily grind got in the way of actually getting it pushed out.  If you'd have seen the update then, you'd know that two weeks ago we were starting to decline even further.   Actually, I'll just copy and paste a large chunk of what I had written for some insight into how life has been recently: It's hard to know what is worthwhile to share and what are the minor nuances of the day to day that are likely just use as caretakers being extra sensitive to. The general idea, though, is that Ash is declining.  If you look at it week over week, we are noticeably further along the path than we were. If you want some candor, this part of the journey is absolutely the worst (to date).  Originally, there was something so raw about the initial diagnosis that it was a tough few days/weeks to pro