Ever Singing For Joy

To Tell You The Truth, The steadfast love of the Lord never ceases his mercies never come to an end they are new every morning great is your faithfulness. "The Lord is my portion," says my soul, "therefore I will hope in Him." Lamentations 3:22-24 Below is the most important message I'll ever have to offer and the most important message I hope you hear through the entirety of our journey... You know, it's funny (...it's funny how I keep using the phrase, 'it's funny', but anyways...) until last night I hadn't really listened to music during this entire process with Ashley.  I usually have a soundtrack for every season of life.  There's something intimate about having music to sink or swell the emotion of life's events.  During these past few days, I have neither wanted to sink or swell anything... I've wanted everything to stay as still as possible for fear that if the wrong thing moved, everything...

Same rules as last night: Status, Things to Pray For, Needs are toward the bottom of the post. Otherwise, Life and how it's unfolding is right... here...   Starting off a little differently tonight (and slightly earlier too).  When I set out to write this blog, it was really meant to inform everyone how Ashley's doing and the fact that the only reason we're even able to tell this story is because God has given us the opportunity.  That's still the primary intent, but I'm finding more and more that actually addressing how I'm feeling, what's going on behind the scenes and the overall experience of the situation at hand is helping me process.  And, according to so many of the messages I've been receiving it is helping others process too.   "And so, from the day we heard, we have not ceased to pray for you, asking that you may be filled with the knowledge of his will in all spiritual wisdom and understanding, so as to walk in a man...

Good Evening - Before I get in to the official update and analysis of what's going on with Ashley, I want to take a minute to acknowledge something that's pretty spectacular: that would be the UAB staff.  From our neurosurgeon, neurologist, consult teams, nurses, students and even the custodian/janitorial personnel, they have all been professional and empathetic.  I'd also point out they've answered my (numerous) questions about what's going on, what to expect and how the devices, electrodes, and medicinal processes work.  (I ask a ridiculous amount of questions; it's how I learn... and in this case, how I deal with what could be an overly stressful situation)  All in all, I am so thankful that God has provided such a wonderful staff for this experience.  It's funny (funny may not be the right word) how we worry so much about things we have zero control over and yet in the thick of a storm those 'things' don't really seem to matter anymore. Con...

Good Evening- **Disclaimer: I'm an engineer.  I'm not a writer.  I did not major in English.  I prefer a mix of stream of consciousness and storytelling  as opposed to a formal MLA style paper.  If that really bothers you, I'm sorry and you will struggle through my posts.** Originally, I thought this would be the best medium to distribute information about the journey we are on.  I was wrong.  Even though it seems the sporadic updates I've gotten today have felt fewer and farther between than I would have liked, it all really came at a speed that was too fast to distribute through this blog. So, I imagine going forward this may be used as a milestone platform.  There will be honest, blunt communication of what's going on.  There will also be some behind-the-scenes analysis of everything.  I can't promise these will be short posts, but I can promise they'll be real and they'll be raw. So, let's start with today.  Oct...